Thursday, February 9, 2012

The NODCC

Today, I became a member of the NODCC, or the National Organization for Disorders of the Corpos Collosum.  I'm in what a friend calls "a state of true whelm" over it.  I'm going to be able to meet others like myself, and while the variety of symptoms can be very different, there are some definite clusters of them that appear among adults with complete AgCC.

I'm able to read the stories of other adults, as well as parents of children with this disorder...what I wouldn't give for my parents to have known of this and its implications.  Where before I felt pain when thinking of my family, whom I'd really been estranged from by the age of 25...I have nothing but compassion now.  Internally, I'm beginning to have peace over all these years of angst.  

So much has happened over the past several years, I feel like a newborn baby all over again, in the sense that "the world is my oyster" inasmuch as I can learn to thrive withing my little part of the world, with a clear definition of my lacking of certain abilities, I can begin to focus on those I excel in, and those that I can improve.


Not too many months before this diagnoses, I'd given up hope on so many levels.  This was the "missing piece of the puzzle for me", and I can't begin to tell you what that means to me.  It brings me to tears of joy and laughter.  Not sayin' that my life has become perfectly rosy for me, but its becoming not just tolerable, but at times and always a joy to be alive.

Just Joe

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