I amused when I consider, it took the doctors fourty five years to find my Agenesis Corpus Callosum... I have always known that I saw the world differently than other people, but, how the hell was I supposed to tell them that? That's like I speak Latin, and you speak Greek, and further more I think in Hungarian (I dunno, just picking at languages, to make my point lol.)
Our society is becoming increasingly focused on children passing a standardized test, yet not teaching them how to think for themselves. One also has to consider that if a child does not fit into the mold society cuts out for them, they will be ostracized as the square peg in the round hole. Is this really the legacy that we want to pass on to our posterity? Those that society cannot hammer down into submission, are then shamed and hid in the darkness (of their minds, and of the world.)
This way of thinking finds its way into many different aspects of American life. The disabled are seen as burdens, as not benefiting society, as not capable of doing so. We are marginalized, and hidden; when we demand equal rights, we are told "we shouldn't get 'special' treatment." And for those that have a "hidden disability" (it cannot be seen with the eyes) Americans often hold even more contempt...we use chemical to drug them into submission, with very little actual attention to the person or their disability. If this doesn't "work" we reject them, jail them, institutionalize them. I am not only referring to mental illnesses, but also to developmental disabilities, learning disabilities, congenital brain defects and the like.
What is even sadder, if all these were not shamed and hidden away by society, not only would they "fit in" or even thrive, no, someone might hold the cure for cancer in their mind and experience. Someone else might solve the energy crisis and global warming in one swoop. Someone might fill the hearts of their loved ones, with pride, and joy, and unconditional love. Someone might smile.
All these many souls, send to the dark, forgotten places of society...they are our mothers, and fathers, brothers, and sisters, aunts, uncles, cousins, friends, or they should be.
The Victorian Age mentality in the United States (and many other parts of the world) is perverse, oppressive, unfair, dangerous to society on so many levels I cannot even count. George Orwell 1984...from MY point of view, anyhow.
I no longer have to imagine what it might have looked like, had my condition been detected and I'd received early and continual intervention, ( not that my family didn't try, but information and resources were not available to them), what I might have become in life...I don't have to imagine, because I'm beginning to make a difference in the lives of parents with children born with ACC, and with those of us born with ACC...at the very least, an ear to hear them with, so that they can be heard.
Over the next few months I want to do more research into this area, taping both sociological and psychological studies, as well as national statistics, particularly in regards to those of us with "hidden" disabilities, etc...should be interesting!
~A Boy With a Whole in His Head