This is a difficult post for me to write, because this attitude is so prevalent today. "You can't have autism...you can't have ACC...you don't "look" disabled." I always come back and ask people "what the hell does "disabled" look like?" The stereotypes that everyone with ASD or ACC is "Rainman" is excruciating to bear. (Although the real Rain man, Kim Peeks did have ACC like me.) The faces of the disabled are multitudinous and individual. No one person with ACC or ASD is alike.
So, when I hear that ignorant comment "you don't look...." I have to remind myself that they are betraying their own ignorance.
People also look at me, because I drive, I can bathe myself, cook meals for myself and think "well, he can do all that, so he can't be disabled." But the facts are, I can't drive at night or long distances, become easily confused driving, I forget to bathe and brush my teeth on a regular basis, and have great difficulty managing healthy meals of any kind...most able-bodied individuals are only comfortable looking at the surface, because they know if they scratch any deeper that they may not like what the find.
Then you have those that say that I would "wear my disability as an excuse, to be (lazy, stupid, moocher, want "attention") different. I would sincerely challenge any of those people who think this, to live a day in my shoes. Before I was put on disability in my mid-twenties I had tried MANY dozens of jobs...listening to the perverse voice in my head of my parents' obsessive Protestant work "ethic" that "you just need to try harder, you are just lazy." I tortured myself with their voices for too long. And if I was "lazy" how was it that I had close to 50 jobs on my SSA job record before I was given SSDI? WHICH ONE of those jobs was I "lazy" at?
I don't "wear" my disability, I was BORN without a Corpus Callosum, I was BORN with autistic traits, I can't and don't "put it on and take it off" at will, although my poor sick parents would have me believe that. Granted they didn't have any access to proper diagnoses and treatment for what I have when I was a child....but still..... I don't "have" ACC or Autism, it is part of my identity, and on some level is who I AM. When I was properly diagnosed, I could finally reckon with who I was, I could stop judging myself, start loving myself and start to discover the many and great talents that I DO possess.
So, if you are of "able-body" and "able-mind", please be careful not to judge, you have no idea the struggles another person goes through.
A requested repost from an earlier date>>>>>>>>> I want to talk about the ACC and ASD phenomenon of meltdowns....
There is a common thread amongst those on the Autism spectrum and those with Agenesis of the Corpus Callosum. We all have varying levels of ...
This is a difficult post for me to write, because this attitude is so prevalent today. "You can't have autism...you can't hav...