ACC Resources

The National Organization for Disorders of the Corpus Callosum (NODCC)
The NODCC was the first contacts I had when I was diagnosed with ACC.  They work to support and educated parents of children with collosul disorders and adults as well.  A great resource for which I am really grateful

Agenesis of the Corpus Callosum ACC listserv on Facebook
A good place to start on Facebook, mostly parents of ACCers and some adults as well.

Young adults and adults with Disorders of the Corpus Callosum
A place to start for adults with ACC

Agenesis of the Corpua Callosum Listserve (email group)
Same as above, but an actual email list

Agenesis of the Corpus Callosum Awareness Association (ACCAA) on Facebook
Another list of adults and children (parents) effected by ACC

Some Good books to start:

*****More to come*****


  1. thank you very much. I have recently been diagnosed and have experienced so much of what you have written about. kind regards, lynn

    1. Thank you Lynn sorry it took so long to reply, have been updating my blog and saw your comment. I apologize.
      After the blog is updated completely I will be posting again. I hope to move the blog to another platform soon. Again, sorry and thank you so much for commenting <3


Meltdown Madness; Sensory Processing Disorder & Cognitive Overload

A requested repost from an earlier date>>>>>>>>> I want to talk about the ACC and ASD phenomenon of meltdowns....